this question, so I have copied & pasted it here for you. Mayo Clinic
has done extensive work with this condition & this info may be very
helpful to you & your cousin.
Hi Emily - sorry to hear that your cousin is having to go through
this. Here is an excerpt from Mayo Clinic regarding Hidradenitis
Suppurativa. If she indeed has been diagnosed with this, she may want
to review this excerpt & compare it to what all has been done for her
so far. Has she seeked additional opionions from other doctors? It
would probably be a good idea to do so. Here is the excerpt & I will
also include the link to Mayo's site that has more extensive
information about this condition.
Treatments and drugs for hidradenitis suppurativa
By Mayo Clinic staff
There is no cure for hidradenitis suppurativa. But early treatment can
help manage the symptoms and prevent new lesions from developing.
Treatments depend on the extent of the affected areas and whether the
sores are painful or infected. Mild cases can be treated with self-
care measures, including warm compresses and regular washings with
antibacterial soap. Moderate cases may require medications, such as
those you rub on the affected areas (topical medications) or those you
take by mouth (oral medications). Possible medications include:
■Antibiotics to treat infection. Antibiotics taken for a long time
early in the disease may prevent future outbreaks or prevent the
disease from worsening.
■Oral retinoid medications to stop oil gland functions and to prevent
the plugging of the hair follicle.
■Nonsteroidal anti-inflammatory drugs to reduce pain and swelling.
■Corticosteroids or immunosuppressant drugs.
For severe or persistent cases or for deep lesions, surgery may be
necessary.
■Incision and drainage. Surgical drainage or removal of the lesions
may be an option when the disease involves a single small area.
However, this treatment won't prevent the disease from returning and
is generally used for short-term relief.
■Uncovering the tunnels or tracts. Cutting away skin and flesh that
cover any tunnels or tracts can increase healing of the lesions and
minimize scarring. This doesn't prevent the disease from returning in
the treated area or another area of the body, however.
■Surgical removal. Surgical treatment of recurrent or severe symptoms
involves removal of all involved skin followed by direct closure with
skin flaps or with skin grafting (removing skin from one area of your
body and attaching it to another). Full surgical removal of the
affected areas can treat the disease that is present but doesn't
prevent the disease from occurring in other areas.
Obesity, incomplete removal and ongoing skin infections can increase
the chances that hidradenitis suppurativa returns, even after surgical
treatment.
The link: http://www.mayoclinic.com/health/hidradenitis-suppurativa/ds00818
Please share this info with your cousin & I hope that this will be
helpful.
Deborah
On Feb 6, 9:07 pm, Emily <emilyshawcr...@gmail.com> wrote:
> I do not know where else to turn and I cannot waste any more time! My
> cousin is 28 and suffering from Hidradenitis Suppurativa. Only 1 to 2
> % of doctors even know what this is. It is a severe case of acne
> usually found in overweight people, where the pores get clogged and
> infected. The infection tunnels through the flesh leaving tracks
> inside and it never stops spreading, there is no known cure for this
> disease. It started a year and a half ago in her armpit and it has
> never gone away. She is in excruciating pain everyday all day, she
> never leaves her couch. She has an 18 month old that she can barely
> take care of. Just recently it has spread to her chest and I honestly
> don't think she will beat this on her own, or with the doctors she is
> currently seeing. I keep thinking cleanse, LLW, Frankincense, oregano,
> melaleuca, but I don't know what to do or if this will even help.
> She has looked for other doctors but it is near impossible considering
> the small amount that have even heard of it. She is in a support group
> and even they don't have great answers!
> In need of hope,
> Emily
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