RE: [Everything doTERRA] Re: Hidradenitis Suppurativa I can't find help!

yes thank you she did see a couple of new things in this site, thank you. She has only had a couple of opinions becuase it's near impossible to find a doctor who has actually heard of this, but all the replys are good news to me. Emily
 
> Date: Sun, 7 Feb 2010 13:59:21 -0800
> Subject: [Everything doTERRA] Re: Hidradenitis Suppurativa I can't find help!
> From: pacifica815@gmail.com
> To: everythingdoterra@googlegroups.com
>
> Hi Emily - I don't know if you saw my reply to your original post on
> this question, so I have copied & pasted it here for you. Mayo Clinic
> has done extensive work with this condition & this info may be very
> helpful to you & your cousin.
>
> Hi Emily - sorry to hear that your cousin is having to go through
> this. Here is an excerpt from Mayo Clinic regarding Hidradenitis
> Suppurativa. If she indeed has been diagnosed with this, she may want
> to review this excerpt & compare it to what all has been done for her
> so far. Has she seeked additional opionions from other doctors? It
> would probably be a good idea to do so. Here is the excerpt & I will
> also include the link to Mayo's site that has more extensive
> information about this condition.
>
> Treatments and drugs for hidradenitis suppurativa
> By Mayo Clinic staff
>
> There is no cure for hidradenitis suppurativa. But early treatment can
> help manage the symptoms and prevent new lesions from developing.
>
> Treatments depend on the extent of the affected areas and whether the
> sores are painful or infected. Mild cases can be treated with self-
> care measures, including warm compresses and regular washings with
> antibacterial soap. Moderate cases may require medications, such as
> those you rub on the affected areas (topical medications) or those you
> take by mouth (oral medications). Possible medications include:
>
> ■Antibiotics to treat infection. Antibiotics taken for a long time
> early in the disease may prevent future outbreaks or prevent the
> disease from worsening.
> ■Oral retinoid medications to stop oil gland functions and to prevent
> the plugging of the hair follicle.
> ■Nonsteroidal anti-inflammatory drugs to reduce pain and swelling.
> ■Corticosteroids or immunosuppressant drugs.
> For severe or persistent cases or for deep lesions, surgery may be
> necessary.
>
> ■Incision and drainage. Surgical drainage or removal of the lesions
> may be an option when the disease involves a single small area.
> However, this treatment won't prevent the disease from returning and
> is generally used for short-term relief.
> ■Uncovering the tunnels or tracts. Cutting away skin and flesh that
> cover any tunnels or tracts can increase healing of the lesions and
> minimize scarring. This doesn't prevent the disease from returning in
> the treated area or another area of the body, however.
> ■Surgical removal. Surgical treatment of recurrent or severe symptoms
> involves removal of all involved skin followed by direct closure with
> skin flaps or with skin grafting (removing skin from one area of your
> body and attaching it to another). Full surgical removal of the
> affected areas can treat the disease that is present but doesn't
> prevent the disease from occurring in other areas.
> Obesity, incomplete removal and ongoing skin infections can increase
> the chances that hidradenitis suppurativa returns, even after surgical
> treatment.
>
> The link: http://www.mayoclinic.com/health/hidradenitis-suppurativa/ds00818
>
> Please share this info with your cousin & I hope that this will be
> helpful.
>
> Deborah
>
> On Feb 6, 9:07 pm, Emily <emilyshawcr...@gmail.com> wrote:
> > I do not know where else to turn and I cannot waste any more time! My
> > cousin is 28 and suffering from Hidradenitis Suppurativa. Only 1 to 2
> > % of doctors even know what this is. It is a severe case of acne
> > usually found in overweight people, where the pores get clogged and
> > infected. The infection tunnels through the flesh leaving tracks
> > inside and it never stops spreading, there is no known cure for this
> > disease. It started a year and a half ago in her armpit and it has
> > never gone away. She is in excruciating pain everyday all day, she
> > never leaves her couch. She has an 18 month old that she can barely
> > take care of. Just recently it has spread to her chest and I honestly
> > don't think she will beat this on her own, or with the doctors she is
> > currently seeing. I keep thinking cleanse, LLW, Frankincense, oregano,
> > melaleuca, but I don't know what to do or if this will even help.
> > She has looked for other doctors but it is near impossible considering
> > the small amount that have even heard of it. She is in a support group
> > and even they don't have great answers!
> > In need of hope,
> > Emily
>
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