place. Eyelids blepharospasms, face Dystonia, throat Dysphonia,
neck cervical Dysphonia. Also Meige syndrome and paradoxical vocal
cord motion, meaning VC's working backwards. Very crippling in his
face and neck. Dr's says the Dystonia can go to other parts of his
body. So we have talked to UCLA Drs. about surgery on his brain.
This is called brain stimulation surgery, where the implant is a
device in a part of the brain, like a pacemaker. This device when put
in his brain controls the muscles and spasms etc. But Dr's say this is
to invasive and infections are high. So would not do this at this
time. Wayne was on Parkinson's meds, but was taken off of these, not
helping. So for now just getting Botox and Xemin injections. The Dr's
say his condition is rare and bizarre.
Does anyone have any suggestions on oil protocols for this? Much
thanks!
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