the spine and on the bottom of the feet daily, or as often as needed. I would hold
off on any other oil until you can see the efficacy of this one.
Pat
On Mon, Mar 28, 2011 at 11:11 PM, Amelia1968 <ameliasantidotes@gmail.com> wrote:
Need help please we have someone with this syndrome and we just are
not sure exactly what route to take with the oils. My first instinct
is to use Frankincense for the seizures and layer that with maybe some
Lemongrass since that is what is recommended in the ME book...and then
I'm thinking Balance...any other suggestions???
Comments...experiences??? Thanks so much!
What is Dravet Syndrome?
Dravet syndrome, also called severe myoclonic epilepsy of infancy
(SMEI), is a severe form of epilepsy. It appears during the first
year of life with frequent febrile seizures – fever-related seizures
that, by definition, are rare beyond age 5. Later, other types of
seizures typically arise, including myoclonus (involuntary muscle
spasms). Status epilepticus – a state of continuous seizure requiring
emergency medical care – also may occur. Children with Dravet
syndrome typically experience poor development of language and motor
skills, hyperactivity, and difficulty relating to others.
In 30 to 80 percent of cases, Dravet syndrome is caused by defects in
a gene required for the proper function of brain cells. Borderline
SMEI (SMEB) and another type of infant-onset epilepsy called
generalized epilepsy with febrile seizures plus (GEFS+) are caused by
defects in the same gene. In GEFS+, febrile seizures may persist
beyond age 5.
Is there any treatment?
Seizures in Dravet syndrome are difficult to control, but can be
reduced by anticonvulsant drugs. A ketogenic diet, high in fats and
low in carbohydrates, also may be beneficial.
What is the prognosis?
As children with Dravet syndrome get older, their decline in cognitive
function stabilizes, and in many, it improves slightly. However, most
teenagers with Dravet syndrome are dependent on caregivers. The
degree of cognitive impairment appears to correlate with the frequency
of seizures.
What research is being done?
The NINDS conducts and supports a broad program of basic and clinical
research on all types of epilepsy, including Dravet syndrome. Study
of the genetic defects responsible for Dravet syndrome and related
disorders is expected to lead to the development of effective drug
therapies.
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