Oh my goodness, one of my best friends has this as well! I had never heard of it until her, she got it about 10 years ago. She does chemo for it and is very sick right now. :( I wish there was more info out there about it!!
On Monday, June 2, 2014 6:01:40 PM UTC-4, Karen Miller wrote:
-- On Monday, June 2, 2014 6:01:40 PM UTC-4, Karen Miller wrote:
My mother has a rare blood disorder called essential thrombocytosis. I am looking for a suggested protocol to help her deal with it. It also accompanies high blood pressure which she checks many times per day. Below is a description of the disorder.
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I have essential thrombocythemia - diagnosed in September, 2013. The most important thing a patient can do is to find a hematologist who is an MPN specialist, or at least has a number of MPN patients within his/her practice. Medication can control platelet levels. Other things such as diet, exercise can help to control constitutional symptoms. Good luck to your mother.
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