Monday, November 25, 2013

Re: [Everything doTERRA] Prader-Willi Syndrome, metabolism

I have heard of this often on this forum and hope that when you try the oils you can report back to us so we know what is helping. I agree with the slim and sassy for helping with this. There are lots of possibilities so it will be interesting to see what you decide on.

Pat


On Fri, Nov 22, 2013 at 8:26 PM, Miriam <mnjholt@gmail.com> wrote:

I'm trying to see if anything may help my son's metabolism (not quite 2 yrs old), who has Prader-Willi Syndrome.  Looking up on the forums I found a basic discussion from 2011.  With Prader-Willi the chromosome portion to control the hypothalamus is missing (in the type he has- deletion), thus no "software" to run the organ, leading to many endocrine issues (on top of others).  Their body has a naturally slow metabolism,  but as they get older their brain (hypothalamus) doesn't tell them they are full, thus they always think they are hungry.  (Which is interesting since as an infant they have no appetite, refuse to eat and are either force fed or tube fed.)  So a child with this typically always wants to eat, because the feel hungry, yet they actually need less calories than a typical child.  I mentioned essential oils to his endocrinologist, who is amazing, and she said she has not personally studied it but felt there would be no harm in trying.  So I see possibilities (looking at doterra info and other sites) of slim and sassy, clove, geranium, grapefruit, and fennel.  Looking for something that may work topical or aroma.  His metabolism problem is chromosome/genetic based.  I wanted to see if anyone else had a child with Prader-Willi and had successful findings for their metabolism.

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PAT LEAVITT
FOUNDING DIAMOND CONSULTANT

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