Emily,
On Tuesday, December 16, 2014 5:28:20 PM UTC-6, Emily McGlinchy wrote:
-- First, I'm sorry that you are so frustrated with your medical team. I would probably sit down with the Dr. who took you off the diuretic and ask what you should have done differently in communicating with the nurses to have reached that conclusion earlier. Sometimes it's asking the right questions, including asking what you could have done differently. If that meeting doesn't go well, and you don't feel confident in their care - I would be RUNNING to a different doctor and medical support team. We all have to fight for our best care, but what you described has me believe that you have lost your confidence in them having your best interest at heart. You need to find a doctor/group of doctors who you can trust. I would also encourage you to have a family member or close friend accompany you to the meeting, and to get involved in your care as a 3rd party opinion. Sometimes having someone slightly separated from the situation helps add perspective.
I would also write a formal letter stating that you followed their instructions, what the ramifications were, and why you are afraid that their lack of response will cause larger issues in the future. Ask them to reassure you how future interactions will be handled differently. Reiterate to them that you are trying to do what is best for your body, and that you need their help. That you want to follow instructions and want to remain a qualified candidate. That you want to be on the same team with them. Ask them if they're on the same team with you. Then keep that and any response from them on file.
I would be very careful using essential oils along with medications without your doctor's approval. We talk about how effective and how potent the oils are - they are - and depending on the drugs you are taking, you can cause an effective overdose adding oil on top of meds. I love essential oils, but the more research I do, the more I am convinced that we must be cautious when mixing them with other drugs. Because they work - which is a good thing. You just have to be careful. (for instance, if you're on blood thinner, you don't want to add an oil that will also thin blood, such as mint). Start slowly, with a very little amount and work up. I love the phrase "use as little as necessary, as often as possible"... so, if you can use 1 drop EO in a Tablespoon of carrier oil, apply only a portion of that topically and experience beneficial results - then that's all you should use. Less than a drop a dose, but it might be all that is necessary! Taking this approach also makes oils much more economical.
I hope that you find a team that will help you, that you can feel confident in, and that you will be able to use the natural support mechanisms (such as EO's) that you desire to explore.
Tracy
On Tuesday, December 16, 2014 5:28:20 PM UTC-6, Emily McGlinchy wrote:
I currently have a congestive heart failure and I am 28 years old now. (I was born with a heart defect.) For months, my CHF specialist, the ARNP and I were thinking it was fluid build up in my tummy, and we thought the diuretic (Torsemide) was just been stubborn to work. So, the doctor and ARNP were increasing my doses constantly since my weight never went down. Well, in October, I went out for lunch with my friend, and of course my lunch was salty. Usually, when a chf patient gets a salty meal, it makes their weight goes up. Well, I lost a pound next day. I was shocked and confused. That night I had a cup of hot chicken broth, and next day I lost nearly another pound. I emailed to the CHF specialist's nurse. She never replied back. Later that week, I saw the CHF specialist, and told her about that situation. She said that it means the medicine doesn't work anymore. I was admitted to the hospital that night and had a heart catheterization next week. Nothing was wrong with my heart. I told the doctors who took care of me in the hospital, and even my cardiologist. They lowered the diuretic a little by little. But the side effects were coming back every three days. I asked for a different meds, then my cardiologist prescribed me a different diuretic but it was in the same class (Bumex). I have been telling the RN so many times the symptoms (nausea, no energy, and my weight would go down if I had a salty food). Today, the I emailed to the nurse a new symptom (unable to go bathroom). Finally, my regular cardiologist took me off the diuretic. How many times do we need to tell the doctors what is going on with the stupid medicine? It took me nearly two months to let the doctor know what was going on. I am totally disappointed with the cardiology team
Back in January, my CHF specialist told me that if I am not following their instructions, then I will not get a heart transplant.
If you were in the same situation like me, then would you stop taking the medicine without getting your doctor's permission first?
Do you know any good essential oils for heart failure, edema/ascites and to prevent kidney problems? I do not have a job now and I cannot afford the LLV Pack. Would Oregano be good for preventing kidney problems?
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